ALS Families Project

The identification of a genetic mutation in a patient with ALS implies risk to family members. To help individuals from ALS families understand and manage that risk, we have established ALS Families Project, a pre-symptomatic ALS program at the Eleanor and Lou Gehrig ALS Center sponsored by Project ALS. Led by our genetic counselor, Elizabeth Harrington, the goals of this program are to identify, educate, and support at-risk individuals, and to follow them before symptom onset to study the earliest steps in the disease process. The ultimate goal of the ALS Families Project is to develop therapies to delay or prevent disease onset.