The Eleanor and Lou Gehrig ALS Center offers support groups in New York City and Westchester for patients diagnosed with amyotrophic lateral sclerosis (ALS) and their caregivers.
The groups' primary goals are to educate patients, families, and professionals about living with ALS. The support group is educationally oriented and includes a key speaker who presents on a particular subject. Topics may include alternative therapies, home meal delivery service, companion programs, research updates, physical, speech, and occupational therapy, medical equipment, respiratory devices, and financial planning, and more.
The groups' second aim is to mobilize the expression of human feelings related to living with the disease. This is done primarily by "telling one's story". The empathy that exists between individuals within the group arises from shared challenges and the "truth" of "one who has been there." During this time, individuals have the opportunity to listen to each other and to give and receive support through the exchange of experiences, feelings, and coping techniques.
For more information, please contact Alyssa Keenan, ALS Family Care Specialist, at AKeenan@mdausa.org or 212-682-5272.